Ethical considerations for movement mapping to identify disease transmission hotspots

Bouke de Jong; Badou M Gaye; Jeroen Luyten; Bart van Buitenen; Emmanuel André; Conor J Meehan; Cian O'Siochain; Kristyna Tomsu; Jérôme Urbain; Koen Peeters Grietens; Maureen Wandia Njue; Wim Pinxten; Florian Gehre; Ousman Nyan; Anne Buvé; Anna Roca; Raffaella Ravinetto; Martin Antonio

doi:10.3201/eid2507.181421

Ethical considerations for movement mapping to identify disease transmission hotspots

Bouke de Jong, Badou M Gaye, Jeroen Luyten, Bart van Buitenen, Emmanuel André, Conor J Meehan, Cian O'Siochain, Kristyna Tomsu, Jérôme Urbain, Koen Peeters Grietens, Maureen Wandia Njue, Wim Pinxten, Florian Gehre, Ousman Nyan, Anne Buvé, Anna Roca, Raffaella Ravinetto, Martin Antonio

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Abstract

Traditional public health methods for detecting infectious disease transmission, such as contact tracing and molecular epidemiology, are time-consuming and costly. Information and communication technologies, such as global positioning systems, smartphones, and mobile phones, offer opportunities for novel approaches to identifying transmission hotspots. However, mapping the movements of potentially infected persons comes with ethical challenges. During an interdisciplinary meeting of researchers, ethicists, data security specialists, information and communication technology experts, epidemiologists, microbiologists, and others, we arrived at suggestions to mitigate the ethical concerns of movement mapping. These suggestions include a template Data Protection Impact Assessment that follows European Union General Data Protection Regulations.

Original language	English
Journal	Emerging Infectious Diseases
Volume	25
Issue number	7
Pages (from-to)	e1-e6
Number of pages	6
ISSN	1080-6040
DOIs	https://doi.org/10.3201/eid2507.181421
Publication status	Published - 2019

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10.3201/eid2507.181421Licence: CC BY

2019eidi00e1Final published version, 328 KBLicence: CC BY

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de Jong, B., Gaye, B. M., Luyten, J., van Buitenen, B., André, E., Meehan, C. J., O'Siochain, C., Tomsu, K., Urbain, J., Grietens, K. P., Njue, M. W., Pinxten, W., Gehre, F., Nyan, O., Buvé, A., Roca, A., Ravinetto, R., & Antonio, M. (2019). Ethical considerations for movement mapping to identify disease transmission hotspots. Emerging Infectious Diseases, 25(7), e1-e6. https://doi.org/10.3201/eid2507.181421

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title = "Ethical considerations for movement mapping to identify disease transmission hotspots",

abstract = "Traditional public health methods for detecting infectious disease transmission, such as contact tracing and molecular epidemiology, are time-consuming and costly. Information and communication technologies, such as global positioning systems, smartphones, and mobile phones, offer opportunities for novel approaches to identifying transmission hotspots. However, mapping the movements of potentially infected persons comes with ethical challenges. During an interdisciplinary meeting of researchers, ethicists, data security specialists, information and communication technology experts, epidemiologists, microbiologists, and others, we arrived at suggestions to mitigate the ethical concerns of movement mapping. These suggestions include a template Data Protection Impact Assessment that follows European Union General Data Protection Regulations.",

author = "{de Jong}, Bouke and Gaye, {Badou M} and Jeroen Luyten and {van Buitenen}, Bart and Emmanuel Andr{\'e} and Meehan, {Conor J} and Cian O'Siochain and Kristyna Tomsu and J{\'e}r{\^o}me Urbain and Grietens, {Koen Peeters} and Njue, {Maureen Wandia} and Wim Pinxten and Florian Gehre and Ousman Nyan and Anne Buv{\'e} and Anna Roca and Raffaella Ravinetto and Martin Antonio",

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year = "2019",

doi = "10.3201/eid2507.181421",

language = "English",

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de Jong, B, Gaye, BM, Luyten, J, van Buitenen, B, André, E, Meehan, CJ, O'Siochain, C, Tomsu, K, Urbain, J, Grietens, KP , Njue, MW, Pinxten, W, Gehre, F, Nyan, O, Buvé, A, Roca, A, Ravinetto, R & Antonio, M 2019, 'Ethical considerations for movement mapping to identify disease transmission hotspots', Emerging Infectious Diseases, vol. 25, no. 7, pp. e1-e6. https://doi.org/10.3201/eid2507.181421

TY - JOUR

T1 - Ethical considerations for movement mapping to identify disease transmission hotspots

AU - de Jong, Bouke

AU - Gaye, Badou M

AU - Luyten, Jeroen

AU - van Buitenen, Bart

AU - André, Emmanuel

AU - Meehan, Conor J

AU - O'Siochain, Cian

AU - Tomsu, Kristyna

AU - Urbain, Jérôme

AU - Grietens, Koen Peeters

AU - Njue, Maureen Wandia

AU - Pinxten, Wim

AU - Gehre, Florian

AU - Nyan, Ousman

AU - Buvé, Anne

AU - Roca, Anna

AU - Ravinetto, Raffaella

AU - Antonio, Martin

N1 - FTX; DOAJ; (CC BY 4.0); 'Online report'

PY - 2019

Y1 - 2019

N2 - Traditional public health methods for detecting infectious disease transmission, such as contact tracing and molecular epidemiology, are time-consuming and costly. Information and communication technologies, such as global positioning systems, smartphones, and mobile phones, offer opportunities for novel approaches to identifying transmission hotspots. However, mapping the movements of potentially infected persons comes with ethical challenges. During an interdisciplinary meeting of researchers, ethicists, data security specialists, information and communication technology experts, epidemiologists, microbiologists, and others, we arrived at suggestions to mitigate the ethical concerns of movement mapping. These suggestions include a template Data Protection Impact Assessment that follows European Union General Data Protection Regulations.

AB - Traditional public health methods for detecting infectious disease transmission, such as contact tracing and molecular epidemiology, are time-consuming and costly. Information and communication technologies, such as global positioning systems, smartphones, and mobile phones, offer opportunities for novel approaches to identifying transmission hotspots. However, mapping the movements of potentially infected persons comes with ethical challenges. During an interdisciplinary meeting of researchers, ethicists, data security specialists, information and communication technology experts, epidemiologists, microbiologists, and others, we arrived at suggestions to mitigate the ethical concerns of movement mapping. These suggestions include a template Data Protection Impact Assessment that follows European Union General Data Protection Regulations.

U2 - 10.3201/eid2507.181421

DO - 10.3201/eid2507.181421

M3 - A1: Web of Science-article

C2 - 31211938

SN - 1080-6040

VL - 25

SP - e1-e6

JO - Emerging Infectious Diseases

JF - Emerging Infectious Diseases

IS - 7

ER -

Ethical considerations for movement mapping to identify disease transmission hotspots

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